Category Archives: Blog

One of the reasons I changed neurologists years ago was because of one comment he had made about my MS. I was young, my symptoms were mostly invisible at that point, and after one positive appointment following an MRI he told me that the medication I was on at the time had done great thingsContinue reading “Happy Anniversary! From: Your neurogenic bladder.”

I can’t find motivation to write anything down. For myself, for therapy, responding to messages, sometimes explaining things in words, or just talking to people. At this very moment my brain keeps leaving to think about things I need to buy? Do I need to fill the bird feeder? I should see what mum madeContinue reading “Sitting pretty”

The inevitable shift from being a vessel, to sustaining the life of a newborn, and then a bystander watching my son grow has been the most surreal, fulfilling, and agonizing experience. Being his mother has been the greatest experience of my life. I’ve loved watching him grow, learn, express all of his emotions, and freelyContinue reading “Mother’s Day”

I’ve had a pretty rough go of it lately. I spend so much time struggling to do things that came easy to me after my therapy and now I question whether it was actually worth it at all. It was so expensive, and I do believe it was worth it with the visible improvements. UltimatelyContinue reading “Why”

Add to the list of things I can’t do: Pools; especially wave pools as I almost drowned 👌🏻 Hot tubs Going literally anywhere that means I have to walk more that 15-20 minutes. I can’t do these things because: Fatigue I can’t keep up & hurts my fragile feelings being left behind/abandoned I become overstimulatedContinue reading “Sad sack”

After the halfway point in physio I became overly concerned with hitting a plateau, and I always asked my therapist “do you think I have?” The answer was no. Seeing change wasn’t difficult for them to see because they saw me weekly. I’m with myself 24/7 and constantly overanalyze every movement. Some things had improvedContinue reading “After it all”

Cute is not something I ever get to look these days. On Thursday I wanted to take Oliver with me to the grocery store and that’s a huge event for me now. Neil went to go pick him up from preschool I had about 20 minutes to put my shoes on and get ready. IContinue reading “Oliver”

I’m reading “The Whole-Brain Child” right now and I’m finding myself applying a lot of it to myself & my own emotions. There’s a part explaining how children may respond to situations with either the right (emotional) or left (logical) brain. The idea is to have the two work together in harmony, and problems ariseContinue reading “Avoidance”

My physiotherapist told me that I would get sick of PoNS when I was asking when to book my maintenance program a while ago. I thought I would want to do it right after but she knew I’d be able tired. She’s right. I’M TIRED OF IT. I’m ready to be done but at theContinue reading “Today was GREAT”

After watching the movie “Living Proof” I wanted so much to be miraculously cured, so near the end of December I started eating differently. The guy promotes this diet curated by his dad that seems to help him. I asked on an MS chat group if anyone follows it and some swear by it. TryingContinue reading “Eating for my body is hard when I like treats”