Category Archives: Blog

My first week of PoNS has been that best. I had to find a bunch of things for not getting car sick. I tried wearing an eye mask because I thought covering my eyes would help since my eyes are the culprits — not helpful. So I looked on Amazon for everything that I couldContinue reading “Week One”

I had forgotten what it was like to actually have things to do. I’ve been working during Oliver’s quiet time and in the evenings recently and it’s nice. I’m tired mentally, but it’s manageable. It just means I spend less time staring at my phone, which is good. I have a deadline for the endContinue reading “It begins!”

I’m feeling pessimistic about my therapy coming up. This whole weekend I’ve been so tired. Starting Thursday night it was non-stop fatigue. I went for a toy clean in the evening for Oliver’s playgroup, hobbled around, socialized with actual adults, and then I came home to an exhausted Neil. Actually, he drove & picked meContinue reading “I’m tired.”

I was reading Ardra Shephard’s blog (trippingonair.com) and she wrote “Like getting older, MS progression is a sneaky mother-fucker.” Nothing has ever been more spot on. It IS sneaky, like someone gradually stealing your candy. When I was younger I used to go into my parents room and see my dads pile of change onContinue reading “Robot walk”

I’m extra exhausted after this weekend because Oliver came down with a flu on Friday night. I say I’m tired but I know Neil is the most tired one in the house every with a stiff competition coming from the boy. He woke up randomly at 12am, chugged the most water ever, then woke meContinue reading “Chundy chundy chundy”

For the last couple of weeks I’ve been in disbelief of the love and support that came flooding towards me. It’s a weird feeling. Going between happiness and joy, to shock, embarrassment, and guilt. I’m not really sure why I feel guilty? I’m apprehensive about the therapy but then I feel excited to start becauseContinue reading “Crowd-funding! Physiotherapy!”

One day I’m going to break my ankle. I’ve been lucky because I am not exactly careful. I was out for a walk with my mum and she saved me from falling & hurting myself three times. “You’re not very careful! You make me nervous.” She’s totally right! I’m not careful because I haven’t adjustedContinue reading “I’m NOT fragile!”

I really like when kids ask me about my different mobility aids. It’s genuine curiosity and I love that they don’t get caught up trying not to be offensive. I remember being at a playground when a kid stopped, looked at me and asked “how old are you?” I told him I was 33 andContinue reading “I get along best with children & the elderly”

When I talk to my therapist I can never coherently express everything I want to say. Partially because at times I’m crying, but also because I can’t organize my thoughts. I go on long-winded tangents unrelated to what I really want to get at, and then I forget what I actually meant to say. IContinue reading “Mental block”

I want to go to the library. I want to get pumpkins. I want to go to the dollar store. We always run out of time. I take too long to get ready, Oliver is being 3, Neil is tired and needing time to just “be” after a never-ending week. A never-ending time of beingContinue reading “Scottish Prince”